While Joseph Merrick was alive, physicians believed that he suffered from a condition known as elephantiasis. In 1971 Ashley Montagu[?] suggested that Joseph Merrick suffered from neurofibromatosis, a genetic disorder also known as von Recklinghausen's disease, and this disease is still connected with Joseph Merrick in the mind of the public. However, in 1979, Michael Cohen first identified a condition that was named Proteus syndrome[?] by Rudolf Wiedemann in 1983. In 1986 it was argued that it was the condition from which Joseph Merrick actually suffered. Proteus syndrome (named for the shape-shifting god Proteus), unlike neurofibromatosis, affects tissue other than nerves, and is a sporadic rather than familially transmitted disorder.
Books about or inspired by Joseph Merrick
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